He stated that moving around might launch the fluid that swimming pools in numerous areas of her chest, but that it would not produce more bleeding. She’s been coughing a ton, so there’s been recent bleeding from her mouth and plenty of strain to her head. She’s been coughing almost non-cease. Her coughing continued to get worse all through the day. She was on Day 7 of an antibiotic and she was getting worse. Because the day wore on, I felt worse and worse. I’ve all the time felt that she was fluid sensitive, that means that her heart and lungs have a hard time processing an increase in fluids. I felt so guilty. But as is the medical juggling act, the added blood meant fluid overload for her body, so she developed pulmonary edema (fluid build up within the lungs). It confirmed pulmonary edema. But they inform me they are going to come back up since the surgical procedure she had has nothing to do along with her oxygenation.
It just so occurred that she was here to observe a cochlear implant surgery and baha surgical procedure. And there is no such thing as a way I might get here that early. I advised them that I had simply weaned her off Lasix (which she had been on since we had been in Boston in July) so possibly she wants a daily dose once more. Anyway, it is now 9:35pm and after i called her nurse to ask how she was doing she advised me that they are putting her again on CPAP (helps you breathe) as a result of she continues to be respiration too fast and her lungs are sounding junky and wet. So, in case you are waiting on a reply from me – I am so sorry! And Tom’s mom is bringing Murphy to come and visit. We’re hoping that if Murphy gets to do one thing enjoyable every time Harlie is within the hospital up right here, that it will not be so scary for him. They are taking the prepare (which I hope he will get a big kick out of) and Tom and i are going to take him to the zoo (or a museum relying on the weather) and the Nationals baseball game whereas Tom’s mother sits with Harlie. She’s on 60% oxygen and her sats are nonetheless solely 68% (a standard person’s sats are close to 100%). Granted her baseline earlier than this surgery was anyplace from the excessive 70s to the mid 80s – on room air!
They’re engaged on getting all of her meds to be by her g-tube in preparation for eradicating the IV soon (which is an efficient factor). And it’s too late for an exam, and so forth. We are just going to see if the problem continues. Our spirits are still good – so don’t worry about us. So, you actually can enhance how nicely your physique will absorb some nutrients if you pair some foods with good fats. She’s such a superb child. I stated certain. But, it was a little bit weird to hear him speaking to her and stating some variations in Harlie’s face. I’m starting to marvel what Harlie understands and thinks when she hears individuals talking about her, or her friends asking questions on her. People have survived suicide makes an attempt the place they swallowed as much as 85 grams of the stuff without delay. Thanks a lot for all your messages of love and support. Especially since our evening nurse is the nurse we had yesterday.
Yesterday at school Harlie was really tired. And while she was right here Harlie asked to go potty. Whereas she hasn’t thrown up, she’s now tachypneic (respiratory too quick). Tomorrow is a new day. I suppose I’ll discover out tomorrow. Not even me or Tom can hold her hand, brush the hair out of her face or wipe the bloody drool from her mouth. They have it set on a low setting now, so she can get used to it. I feel he needs to be screened or one thing. If it helps her, I think her doctor could be agreeable to getting one for her at dwelling. Oh, we had top-of-the-line nurses ever right this moment. Her trainer asked Harlie if she needed Buster Bear.
I’ve requested about this system previously. Because that is at all times the primary query I get requested – does she have a fever? She got a bath and received her hair washed for the first time in almost every week. Being conscious that a problem might occur is the first step to therapy. And once we left, she had a spring in her step and a giant smile on her face. So, this is definitely a step backwards. We spent slightly time with Harlie and by 8:30 or so, she was ready to go to sleep. She did not even need to sit down up to sit down on my hip! And along with her starting college soon (hopefully) I would like her to be in a position to jot down together with her right hand. If her gown comes down off her shoulders and i strive to put it again up, she blocks me along with her hand.